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SoOrLady
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Username: Soorlady

Post Number: 2566
Registered: 9-2003
Posted on Thursday, September 8, 2005 - 2:06 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

yep.. definately a little OCD going on there, Greenie. My MFin-law calls us and leaves messages to tell us where she is going and with whom. That way, when people call and she's not home, they can call us to find out where she is. (and yes, they really do that.)
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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1782
Registered: 9-2003


Posted on Thursday, September 8, 2005 - 3:50 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

I sometimes forget about cancer, too. I forgot for the 5 years that passed between my husband's colon cancer and this past January! Well, "forget" is a strong word. Let's just say it didn't define our life all that much.

I sometimes forget even now because, well, you have to. I can't do the kind of job I do and be a balls to the wall manager AND be thinking about my husband all day. I also can't be a decent mother and always defer to cancer. I find I'm less watchful of late, less nagging about his medicine and eating. This is partly the chart business, and partly mental survival. I even started a little home improvement project this past weekend.

You just cannot think about it all the time if you're in the immediate family place. It would make you crazy. It's sort of bad enough that our life, and our dreams and our scope of expectations have narrowed down to these little rounds of "daddy's chemo." Our "new normal" (really gross phrase) is crappy enough without thinking about it 24/7. I don't wear a little bracelet, or have a magnetic ribbon on the car or any of the rest of the paraphanalia. For me, cancer isn't a religion or a political movement. It's just a big fat pain in the butt that is circumscribing our lives, hopefully just for right now. I refuse to honor it with ribbons and gee-gaws.
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Debby
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Username: Debby

Post Number: 2015
Registered: 5-2001
Posted on Thursday, September 8, 2005 - 9:55 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

wendyn - thank you for that.
cynical and greene - I know what you mean about needing to forget sometimes. My former boss had an 11 year old son with non-hodgkins lymphoma (absolutely fine 9 years later, btw). Work was very helpful for him to compartmentalize, and he said he felt ok, and even confident about 95% of the time. But every once in a while he would think of something dark for a moment, and start to tremble at his desk.

Some positive things today: Mom went in this morning (after his first night alone at the home) and said, "Do you know what day it is today?" and he started to sing "Happy Birthday". I frankly thought that was amazing, even if she did remind him yesterday.

Also, she had positive, comforting discussions with the SW, the dietitian, phys therapist, and medical director (we got extra speedy face-time with the medical director because dad pulled out his PIC line last night.)

Hope tomorrow's a good day.
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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1784
Registered: 9-2003


Posted on Friday, September 9, 2005 - 6:09 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Compartmentalization is the ticket, Debby, you are right! Glad to hear your dad sang Happy Birthday and knew what was up. And I agree with greenetree on the business of sometimes people will just have to freak out. For the patient, too, they can't always think about cancer/the illness. That would be no quality of life at all.
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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1785
Registered: 9-2003


Posted on Saturday, September 10, 2005 - 7:42 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

[Caution! Somewhat downer, self-indulgent post, with cheerful-ish ending]

This morning I'm thinking 2 thoughts: (1) that Hunter Thompson was a coward to commit suicide, and (2) about the Samuel Beckett character who says "I can't go on, I'll go on."

Had a couple of passing chats with people this week who expressed "I don't know how you do what you do with all this." The simple answer is a "you do what you need to." Many things I thought I never could do, I do. It's very one foot in front of the other, and you give it your best shot.

My husband has been surviving his chemotherapy, and some of you good people have been driving him. So many thanks for that. His regimen is known to be extremely strong and debilitating: FULFOX with Avastin. Side effects out the whazoo ranging from mouth sores, to intense nausea to profound fatigue. He now weighs a tad over 100 lb. Under his clothes he is skeletal. None the less, and until yesterday, he's been eating, interracting with us, taking care of his own personal needs etc. He soldiers on. His doctor thinks it may be working. Various blood levels are good. Some pain that was there, isn't any longer. Had a CAT scan this week which I'm sure we'll here about next. His kind of cancer is hard to track, and the side effects of the chemo are killer.

All in all, he and we are hunkered down for a minimum of 6 mos of this, max 12. Hard to imagine how he could tolerate 12 given how he is right now at nearly 3. Still. One doesn't know, and one can't predict. He is already at the frontier for a person suffering from the HNPCC syndrome. Even this regimen is not specificially prescribed as many would be dead already (certainly his brother, mother, uncle and aunt were, before their cancer got to where his is).

So I came home on the train last night, thinking about picking up my kid, a pizza and working on my kitchen door/trim painting. New for me to even consider little home projects. Haven't had the mental space for awhile. Also, some reports I need to do for work, which is in an intense place. For you IT-ers, right now I'm responsible for bringing in a new Content Mgt System, an ASP Metrics solution and I run an Emergency Notification application. Lots of crap, pressure. But, so far I survive. My job is about 1/2 ordinary IT mgt and 1/2 knowing and manipulating the politics -- hence the importance of an effective persona etc. among the IT pinheads.

So the kid and I get home and my husband is slumped in the recliner, barely groaning. I get the particulars, gently. Seems he slept all day, hasn't eaten or drunk, is weaker than a kitten. His ostomy bag has sprung a leak. He looks really, really scarey.

My heart sinks. I chase the kid upstairs. I go to the porch and smoke a cigarette, thinking this is very, very bad. Is this the weekend he will die? Should he be in the hospital? What to do.

I come back in and ascertain that his pain patch is a day old. This could be cause of chills (withdrawal). We get that changed. I get a Percoset in him, and some water. We manage, in a kind of 3-legged walk, to get to the bathroom and change the patch, the bag etc. Back to the living room. Get some Boost in him, and lay him down with 3 blankets.

I go have another cigarette. He begins to relax and says why don't we watch a movie. And so we do, my kid, my husband and me (Practical Magic, pretty good). Eventually kid and I go upstairs to bed. Husband is now asleep. I take an Ambien cuz I need to sleep and not lie awake, wondering.

This morning, he's much the better. Still weak, but has been up having made tea for himself. More Boost. He's hauled the ash tray to the coffee table (verboten as we smoke out back) but I am pleased that he had enough of wit and energy about him to even want a cigarette and summon up the energy to go get the necessary. I get another Boost in him, and we talk for a little bit.

Now he's asleep again, which is good. When he wakes up we'll talk chicken noodle soup etc. Gotta get him re-hydrated and fed. Looks like a case of pain patch withdrawal coupled with side effects of chemo. When I can know what's going on, and him too, we can deal and get through it. For another 2 week cycle.

And now, I'll go remove door hardware preparatory to some light sanding and painting. Do some laundry. Buy the kid some sneakers. Think about what a coward Hunter S. Thompson was to kill himself. Hip replacement surgery after effects? Give me a break. Watching what I watch in my dear old soldier boy husband, HST is a wussie boy, no matter how many guns he had, how much booze he drank or how ba-a-a-dd asc his persona. My daughter is stronger: she sits on the couch and strokes her daddy's head when he feels crappy, and teases him. She has looked near death straight in the rictus and kissed it's cheek.

That's my story, and I'm stickin' to it. It's a beautiful day in the neighborhood.
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Noglider
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Post Number: 9352
Registered: 1-2003


Posted on Saturday, September 10, 2005 - 8:39 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Cyn, it was nice running into yesterday evening. You looked really good. Sorry for keeping you a minute too long.

Husband can't lose any more weight, so he's probably reached the low point. He might muddle along like this or, more likely, start getting stronger during the rest of the chemo. That's my prediction, and I'm stickin' to it.
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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1786
Registered: 9-2003


Posted on Saturday, September 10, 2005 - 8:56 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

You, too, M. Noglider. The man is eating some Campebell's chicken noodle now. He eschews all chunkier and fancier, taking comfort in the childhood brands.

Hope your prediction is right. He starts a new round Monday and I've got to get him built back up a bit.
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Noglider
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Post Number: 9359
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Posted on Saturday, September 10, 2005 - 9:02 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Campbell's, Boost, whatever it takes.
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Debby
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Username: Debby

Post Number: 2018
Registered: 5-2001
Posted on Saturday, September 10, 2005 - 9:15 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Wow - cyn, that sounded sooo scary. I'm so glad you figured out the problem, and that he's doing better today. What's the spacing between Curt's treatments? Do you get some time to catch your breath?

bets - I realized I never answered your kind invitation/offer to get together. I thought I would get a better sense, in a few days, of whether I would have time to hit M/SO to hang out and see friends (old/and new). Turns out I'm not really getting a clear sense of anything. I just don't know what I'm going to find, and what my Mom's going to need during this first trip. I'd love to do it, and maybe we can even pull it off on short notice, I just don't know yet.

Thank you, though. Sincerely.
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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1787
Registered: 9-2003


Posted on Saturday, September 10, 2005 - 10:33 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Every 2 weeks, Debby. M (3 hr) goes home with a pump; Tue (2 hr) goes home with a pump; Wed gets the pump off. Following M he gets labs done and doc check in. The chemo is cumulative so the side effects worsen over time. It's doing the job, though.
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greenetree
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Username: Greenetree

Post Number: 5311
Registered: 5-2001


Posted on Wednesday, September 14, 2005 - 2:33 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Cyn - I realize it's been a few days, but have you considered talking to Cynboy's doc about home infusion for fluids? Mom gets really sick, almost death-like, when she is dehydrated. I've learned to recognize the symptoms and can even diagnose them over the phone. Once she gets a liter or two of fluids (takes less than 30 minutes) she is a different person. If Cynboy doesn't have home infusion benefits, the oncologists office can do it easily. The ER as well, but who needs the copay?

There is a certain point when oncology patients need help getting enough fluids in their body.

Also, I bought mom an electric blanket (thanks to the link from SOLady) for under $20 including shipping. The multiple blankies & fuzzy sweats weren't doing it. The blanket works great, especially when you add a cat on top.

So, mom has been doing well. She's been home, puttering. Going to the grocery store by herself. Was supposed to get a pedicure today. Out for dinner last week. I am going in this weekend and am a bit hesitant to talk to her about coming here for the winter. I know she'll say "no". I have mixed feelings about that. Next week is her CAT and results visit. Once again, her last hospitalization screws up the schedule so I won't be there. It was supposed to be this week, which is why I was going.

I feel like it's the calm before the storm.

My stepmother had hip replacement surgery Monday & mom wants to go visit her on Saturday & take her some goodies. It will be nice, I think, for her to be the one visiting the unwell person for a change.

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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1793
Registered: 9-2003


Posted on Wednesday, September 14, 2005 - 7:43 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Things are a bit better now, greenetree. It was a chain reaction: swallowing nothing but barium Thursday prior to the CAT scan, followed by forgetting to change Fentanyl patch. He's back to what passes for fighting strength. Good point, though.

Guarded good news which I feel superstitious about posting: doc thinks, based on CAT and other stuff, that it is working/has worked. I take him for followup Monday. Will get another PET scan scheduled, and an endoscopy (this is the acid test in some ways). May elongate the chemo cycle which will help many things -- meaning, more like every 3 weeks. Keep fingers crossed.
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Debby
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Username: Debby

Post Number: 2028
Registered: 5-2001
Posted on Wednesday, September 14, 2005 - 7:44 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

I'm sure it will be very nice for greenemom to be the one visiting and encouraging.

Talking about calm before the storm, tomorrow I'm flying up to NY. It'll be the first time I'm seeing them in 6 1/2 weeks. To say I'm freaking out is putting it mildly. I've been obsessing about the moment I walk in and see him, and being prepared for that.

The good news is that he has put back a good amount of weight since he has the feeding tube. I thinking he's almost up to 200 pounds (he's 6'2" and very broad - he had been down to 174).

Anyway, to make matters better my son is going out of his way to prove to me that he isn't concerned about his grandfather, and not in the least bit concerned about my departure. The bravado is pretty transparent, but I can't say it isn't getting to me.
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Tom Reingold
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Username: Noglider

Post Number: 9441
Registered: 1-2003


Posted on Wednesday, September 14, 2005 - 7:59 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Debby, please understand that your son's reticence is probably harder for your son than for you. When my mother-in-law (from my first marriage) was dying, my younger daughter, then 7, couldn't face it. She didn't want to see her grandmother. It wasn't until two years later that she wrote a story or poem in school about how much she missed her grandmother and how much Grandma had meant to her.

It might help to talk to him about the feelings that you suspect he is having. This will help him identify them. Later, he may express them, in his own time.
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las
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Username: Las

Post Number: 405
Registered: 10-2003
Posted on Wednesday, September 14, 2005 - 8:10 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Ladies! I've been so dreadfully busy knitting the nancyboy chihuahuas matching sweaters (blue with silver cuffs and collars). I can read while I knit but haven't mastered the type while knit skill just yet...working on it! Rudy the piddler is maintaining a zuftig 3.9. Turns out sis got him from a pet shop that erred about his age. He was too young to feed himself and all those glucose comas seem to have done a number on his 'cognitive skills' - if you know what I mean. (He's a bit s l o w e r than the other chihuahuas on Cocoa Beach...)

Hugs to you all.
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greenetree
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Post Number: 5316
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Posted on Wednesday, September 14, 2005 - 9:18 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Debby - hell. My 35 y/o brother is busy proving the same thing.

I can't say it isn't hard. But you will manage to give him a huge smile, hug and kiss. And lose it later when you leave the room & are out of earshot of him and your mom.

Take care.
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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1795
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Posted on Thursday, September 15, 2005 - 5:52 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Debby, my daughter's reaction to her daddy's illness is somewhat similar. Most of the time -- and with many of her friends -- she evidences no concern at all. In fact, one time, some posts back, when I kind of lost it on the taxi'ing committments she was making for me with respect to her little outings, I said something sort of mean like "Don't your friends know what's going on at home? They have 2 healthy moms and dads, can't they do both ways for a change?" She looked at me kind of stricken and told me she didn't really want them to know how bad it was. I realized then that she, too, had to compartmentalize and wasn't comfortable with a mess of pity and what not. Equally, when her dad is in a crisis place like he was last Friday, she helps me and him, but mostly I want her to go upstairs and out of the room until I get him stabilized. Some of what I need to do is just too personal for him and messes with his strong dad image -- not good for either of them.

Her fears manifest in wholly other ways. This summer she went through a spell of intense desire for a home security system (of all things). I told her we couldn't afford it, and I didn't see the need. Nightmares, etc. I finally realized that the "bad guys" she wanted to keep out and away from her were cancer and death. We had a little talk about "displacment of feelings" and how that was perfectly normal. Mostly, though, kids just don't want to deal with/confront some kinds of fears in the front of their brains if they don't have to. As Tom suggests, those feelings will come out later and in ways the child finds handle-able.
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greenetree
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Posted on Thursday, September 15, 2005 - 7:15 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

BTW - Baby Bro has not told any of his friends or coworkers that his mom is sick. How's that for denial?
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Tom Reingold
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Posted on Thursday, September 15, 2005 - 7:19 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

What a piece of work he is!

Cynicalgirl, it seems your daughter is handling things very well for a kid her age.
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greenetree
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Post Number: 5334
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Posted on Saturday, September 17, 2005 - 9:55 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

I'm here with mom. She's acting like the Greenemom everyone knows, oves and wants to choke half the time. The mail carrier pulled up & gave mom something she'd been waiting for that was mailed two weeks ago. Mom made a derisive comment about the person who mailed it & the carrier said "Greenemom! You sound like your old self! That's so wonderful".

Her hair is coming in and it looks adorable. It's a beautiful silver & very soft. It's very short, but looks like a $600 trendy haircut; it even lays on her head perfectly.

Yesterday, we went to lunch with cousins, errands & dinner at GMF's. Then, ice cream & the drug store. She even picked me up at the airport, which is the furthest she's driven in 3 months.

GMF was charming and on very wonderful behavior - we all had a nice time. She saves her crazy-psycho stuff for when we are alone or on the phone. She wants me to come over and spend some time with her today. I don't want to. There really isn't a good reason, but I have two major character flaws that will probably prevent this:

1. I will give someone a zillion chances to screw up & be very understanding for a very long time. But, once you cross that distant line, I don't look back. Ever.
2. I am very uncomfortable around old, frail people. Sick people don't bother me; physical disabilities don't bother me. Something about really old people scares the out of me. Always has.

As I walked to GMF's front door after parking the car last night & saw her sitting in the window, waving at me, it occurred to me that I will probably get mine but good when I turn into a frail old person.

I did talk to mom about spending the winter, which seemed ridiculous in the context of how well she is doing right now. It's good, tho, that she is doing so well. If she weren't and I asked her, she'd think I was hiding dire news from her. It is more than highly unlikely, tho, that she'll come to Maplewood. Hopefully, she'll continue to do well and won't need to.

On Tuesday, the next CAT scan which could change everything. I think I have entered a parallel universe.
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Cynicalgirl
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Post Number: 1809
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Posted on Sunday, September 18, 2005 - 6:28 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Man, greenetree, your post gives me a weird sort of hope, and I need some right now. Actually, what I need is Marcus Welby, a doc who makes house calls.

Since Friday night (yes, came home to a sicker husband from work), cynicalboy has been a mess. A new kind. Fever in 100 to 102 range, that responds to children's liquid Motrin (goes down easier). Sore mouth/throat to beat the band. Forcing water, Gatorade etc. down his him so fighting a lot. Getting him to take Immodium for the diarrhea. Change his pain patch. Do an errand, come home and check on him.

Today I'll call whoever is "on call." The direction to me from the doc have been to try to get him back on keel when like this, not to go to the ER. Hospitals can advance/cause infection. It's so much g-d responsibility. I take his temperature, BP. Force liquids. Fight with him to do same. Remember that he is not a good judge of what is good for him. I know he's lost weight since Friday, the old not wanting to eat cuz it hurts so much.

Mostly I'm trying to get to Monday as he has a doc appointment at 8:30. If I thought it wouldn't make him worse, I'd love for him to be in a nursing home right now to get a bit better and more "self-care." I can't leave him at home like this.

And, of course, I have a big presentation on Monday.

This stuff blows. I did take my kid to see Almost Heaven last night, which while weak in plot continuity and logic, was kinda charming and appropriate for my mood.

The roller coaster is very wearing. I'll do the right thing, whatever that turns out to be here. Stay home with him, get a nurse in. Yes, of course the irony is that the doc thinks the chemo is working. But, as is often noted, sometimes the chemo creates its own separate issues.

Please. No comments about how barbaric chemo is or what have you. It seems to be killing the cancer. My real beef is that I wish he could be safely in the care of someone else right now, who would actually care (not some visit every 4 hr thing). Holding my job for which I have to do more than show up and seeing to this and staying in control seeming for my daughter is REALLY hard.

I have a yellow lined pad next to me. I run my weekends on same, inspirational to-do lists to keep putting one foot in front of the other. I list every little thing I need to do so I can check them off. This is how I get by. I HATE IT!!! The alternative is, of course, worse.

YECH!!!
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greenetree
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Posted on Sunday, September 18, 2005 - 9:11 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Cyn - I dunno. The whole "stay out of the hospital because of infection thing" is pretty true, but sometimes you still need it.

Sounds like he could really use some IV fluids, which can be done in the ER. Have you tried asking the on-call doc point blank? Or, at least make sure that he gets some at his appointment tomorrow?

Good luck. Yeah - it's freaky to see the difference now. It does give hope. We went out for breakfast yesterday, shopping (Walmart is an insidious place) visited my stepmom & cam home & cooked dinner. Having a friend of mom's over for brunch this morning before I leave.

I'm exhausted from her being well. But, she hasn't felt this well in over a year.
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Joan
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Posted on Sunday, September 18, 2005 - 10:44 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Greenetree:

Great news. May things only improve from here.

Cynicalgirl:

It truly is a roller coaster and from time to time, that roller coaster beaks down, leaving you high up in a pretty scary place but somehow, it always brings you safely back to your dull, ordinary starting point.

Hope all goes well with Monday's check-up. If your husband needs IV fluids, is this something that can be administered at home?
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Cynicalgirl
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Posted on Sunday, September 18, 2005 - 12:53 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Just checked him -- well, actually, went to the ER around 8, and just left to return later. IV fluids, Flagyl (yeck) and stuff. His onco will see him there. He's pretty cheerful, but PO'ed because of hospital. I'm glad, because he'll get stabilized and such which seems to be the need.

Yeah, the rollercoaster stinks. I just roared back from Overlook in my bad asc-s-s-s black SUV blaring The Who, Donna Summer etc.

Hey, I'm still YOUNG IN HERE! GIRLS JUST WANNA HAVE FUN!!!
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Cynicalgirl
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Post Number: 1811
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Posted on Monday, September 19, 2005 - 10:58 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

For those of you who've been worried and e-mailed me: As of this a.m. the patient is way better. They even had an infectious disease guy in. He's all hydrated and eating some stuff. Broad spectrum antibiotic. His oncologist had been in this a.m.and, in typical fashion said "You don't look as bad as they said." Well, that's cuz they've been fixing him!

Anyway, I hope he's in there till Wed anyway getting back up to fighting strength...
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greenetree
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Posted on Monday, September 19, 2005 - 11:07 am:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Cyn - I was just about to post & ask. Boy, have I been there. What I don't get is why they don't do fluids sooner when it's so obvious that they are needed.

Mom's ID doc is the only one I haven't gotten to meet, which bums me, because ID is my major area of interest.

Best wishes to Cynboy & hope you take the two nights to go to bed early!
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Pippi
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Posted on Monday, September 19, 2005 - 12:19 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

so glad cynicalboy is doing better!
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wendy
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Posted on Monday, September 19, 2005 - 3:23 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Me too Cynicalgirl. I just read the most recent posts starting with Greenetree's visit and finishing with your husband's crisis. So glad the ER route is working. Please send him my warmest wishes. (Also very happy for Greenetree and her mom too of course.)
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greenetree
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Registered: 5-2001


Posted on Wednesday, September 21, 2005 - 8:42 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

So, CAT results are in. Mom sees the doctor tomorrow. She's nervous as hell. Once again, he did not call me first. This time, I had her call the office and leave instructions for him to specifically call me before he talked to her.

She, of course, is reading all kinds of things into this. I keep trying to reassure her that we don't know until we know. All brothers have called within the past 24 hours to find out what I know. And I can't tell anyone anything, because I don't know myself.

I am none too pleased with him (the doc) right now.

So, we wait. I think it will be an Ambien night.
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wbwallflower
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Username: Wbwallflower

Post Number: 192
Registered: 7-2005
Posted on Wednesday, September 21, 2005 - 8:53 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Praying for you greene and cynical.. keep your heads up.
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bets
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Username: Bets

Post Number: 2376
Registered: 6-2001


Posted on Wednesday, September 21, 2005 - 11:04 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Will be checking for updates tomorrow, GT, Keeping everything crossed that the news is good.

Cynical, please tell Cynigirl I say hello.
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greenetree
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Username: Greenetree

Post Number: 5384
Registered: 5-2001


Posted on Thursday, September 22, 2005 - 1:44 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Trying not to get too excited since I talked to mom's friend who went to the doc with her & not mom or the doc yet, but.....

They can't measure the tumor anymore. They don't even think it is a tumor. It's either scar tissue or a touch of pneumonia (doubtful). So, an antibiotic to be safe & two more rounds of chemo.

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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1816
Registered: 9-2003


Posted on Thursday, September 22, 2005 - 1:49 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Don't have a lot to say but that never stops me. I'm home today, faux sick, really just exhausted. Too tired to do blow by blow, but suffice it to say he's been lethargic, kinda delusional and agitated. Fever gone. Did brain scans, this scan, that scan. Cultured every part of his body. As of this a.m. the leading conclusion is that all of these "symptoms" were brought on by lack of fluids and lack of nutrition. No doubt exacerbated by the fact that between Sunday morning and 10 o'clock Wed night he'd really not had anything to eat.

Could I scream? Yes. Does anyone wonder why I'm a control freak? How dare they. Man not eating due to mouth sores and chemo gets sick. man gets sicker due to no food just IV fluids.

Actually, I'm hoping that's all it is. A day or so with food going in will tell. I'm about to go back to the hospital to hang out. Then, tonight, stay home with my kid. The every-wonderful las has been serving as fairy godmother to Cynigirl these evenings, and I think I need to be mommy for a change.

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greenetree
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Username: Greenetree

Post Number: 5385
Registered: 5-2001


Posted on Thursday, September 22, 2005 - 2:02 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Trying not to get too excited since I talked to mom's friend who went to the doc with her & not mom or the doc yet, but.....

They can't measure the tumor anymore. They don't even think it is a tumor. It's either scar tissue or a touch of pneumonia (doubtful). So, an antibiotic to be safe & two more rounds of chemo.

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Cynicalgirl
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Username: Cynicalgirl

Post Number: 1817
Registered: 9-2003


Posted on Thursday, September 22, 2005 - 2:07 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

greenetree, that is GREAT! No reason why your mom can't be a lucky duck and just have some scar tissue. I'm betting on it!

Now send them postive vibes my way. I'm sitting here eating mii MilkyWays trying to get my mojo going so I can go back the hospital. A nurse and I the other night started calling my husband Sponge Bob Square Pants cuz he was absorbing so much fluid...
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greenetree
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Username: Greenetree

Post Number: 5386
Registered: 5-2001


Posted on Thursday, September 22, 2005 - 2:13 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

The doc just called me & it's true. No tumor. He even called the radiologist to ask if he had read the right scan.

Cyn - even if it is pneumonia, no big deal. It's just a touch & that they can handle.

Don't worry about Cynboy; if my mom could beat this, anyone can beat anything. I like nick-names; Spongebob is a good one. I'll have to stop calling mom "Cancergirl" & go back to "Rainman".



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Tom Reingold
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Username: Noglider

Post Number: 9516
Registered: 1-2003


Posted on Thursday, September 22, 2005 - 2:30 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

greenetree, I don't usually curse, but I have to say, that's fcuking incredibly good news.

Cynicalgirl, will your husband accept that as his new nickname?
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SoOrLady
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Username: Soorlady

Post Number: 2602
Registered: 9-2003
Posted on Thursday, September 22, 2005 - 2:36 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Blessings! Greeenetree, such blessings! (Hey! we call my mom Rainman too!)

CYN - Spongebob ... that's great... BIL was in the hospital a while back and it was a good thing.. he got rehydrated and back on even footing. He's in "cool down" mode this month - no more treatments. He's got a couple more weeks to go before they scan him to see if the tumor is smaller (and operable). Hope Cynboy get's what he needs - and is back home soon.
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Pippi
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Username: Pippi

Post Number: 1249
Registered: 8-2003


Posted on Thursday, September 22, 2005 - 2:50 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Greenetree!!! That's so great! I just got a little goose bumpy just thinking about it!

you just made my day
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greenetree
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Username: Greenetree

Post Number: 5389
Registered: 5-2001


Posted on Thursday, September 22, 2005 - 3:21 pm:   Edit PostDelete PostPrint Post   Move Post (Moderator/Admin Only)

Thanks!

Boy, I'm exhausted. I need a nice, long nap. Now that I can truly take a deep breathe, I realized how friggin' tired I am.

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